Sofia Hart, a 30-year-old woman from Massachusetts, has a rare genetic heart condition that leaves her without a heartbeat. She refers to herself as “battery-powered.”
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- What is irreversible dilated cardiomyopathy?
- How does the LVAD help Sofía?
What is irreversible dilated cardiomyopathy?
He has been diagnosed with irreversible dilated cardiomyopathy, which affects one of the ventricles of the heart and could eventually lead to heart failure.
Sofia depends on a life-saving device called an LVAD to keep her heart pumping while she waits for a heart transplant.
How does the LVAD help Sofía?
The LVAD helps the left side of your heart pump blood throughout your body. He learned of his condition in the summer of 2022 while working on a horse farm, The People magazine reported.
@aheartforsofiahart November 14, 2022 my life changed forever. This is the video leaving my local hospital and hometown in #marthasvineyard being picked up by #bostonmedflight and taken to #massgeneralhospital. A day I will never forget. A day that leaves me with a lot of gratitude. From beginning to end. I was in the best hands. From the hospital staff to the friends and family who dropped everything to say goodbye comfortably. To my sister who was also my doctor. To the doctors on the flight, to Victoria who traveled with me, to the most calm and peaceful flight of my life. I think a lot at this moment. Where it all really started. I thought I had Lyme and went on a medical flight. Thank you for your patients as I navigate this medical and healing journey learning to share my story for myself and most importantly, my goal is to help others. #aheartforsofiahart #bostonmedflight #massgeneralhospital #marthasvineyard #community #emergencyresponders #ems #medflight #heartfailurejourney #mindovermatter #secondchances #slowlybutsurley #healingera #medicaljourney #blessed ♬ original sound – AHeartForSofiaHart
She told People: “I started to feel very sore and very fatigued.” It’s like a tiredness that can’t really be described. I wasn’t tired in my brain, but my body was very tired.’
Although Hart’s twin sister, Olivia, was born with the same rare genetic mutation, they couldn’t discover it until Sofia also became ill.
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Olivia had heart problems seven years before Sofia, but they didn’t think it was related to genetics until they both experienced heart failure at a young age.
Olivia also needed an LVAD device before her heart transplant in 2016. Like her sister, Sofia has to use the same device until she can undergo a heart transplant.
“I’m making preparations,” he tells People. “I feel guilty for having the option to find my footing before jumping into a transplant. I came out hot and then I realized, well, the device is working well, I’m doing well with the device, the transplant is a great challenge”. “It’s huge, huge, I wanted to learn more about life, the transplant, living with ‘Janis’ – the name I gave my LVAD -, accepting everything that has changed and now I’m ready for the transplant.”
Hart received the same treatment at age 29 as his sister did at age 22, and lived with an LVAD until receiving a transplant. Hart plugs into a wall outlet in her Boston home to power the device.
She told PEOPLE: ““That cord is pretty long and I’ve learned to live in places where I can move around with that cord.”
Hart chronicled her life on TikTok and her account gained popularity and attracted millions of views. She described how she lacks a pulse and is dependent on batteries. One of her videos received 1.5 million views.
As shown on TikTok, when Sofía plans to go out, she connects her LVAD to power sources and carries an extra battery with her.
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Source: vtt.edu.vn